We hope everyone had a wonderful thanksgiving holiday with family and friends. We have much to be thankful for this year! Cameron is a true miracle in our eyes - he has hit the 6month mark and it's hard to believe how far we all have come. Thank you to all of our family and friends for your prayers and support we are very blessed to have such a good support system.
Cameron has been busy over the last few weeks - we kicked off the holiday weekend with marathon day of Dr appts on the 23rd. Occupational Therapy in the morning, and then we headed off to the pediatrician for another round of Synagis, the flu shot and 2 other vaccines - so 4 shots later and Cameron was not happy with us! We also are now treating Cameron for reflux - as much as I have been trying to avoid this diagnosis over the last few months reality has sunk in when all of his therapists mentioned he really was starting to show more signs of it. So we got a prescription of Zantac 3x day - which Cameron HATES!! I even tried to get him the grape flavoring and it wasn't happening. So we are now using another one called Axid that has a bubblegum flavor and he tolerates this one at least.
After the peeds visit we headed over to Children's for the head ultrasound and neurosurgeon appt. Cameron's fontanel has closed up almost completely so it was very hard to get any decent images - and Cameron did not enjoy this at all!!
But they were able to get a few usable images - we then went upstairs to see Dr. Alden -good news is the head ultrasound looks fine, no major changes and his head circumference is growing on an even plane. So we will see Dr. Alden again in February - another milestone we are now able to go three months between appts! The only unfortunate part is that Cameron will now have to undergo a CT Scan before his Nuero appts so that we can get better images and often the CT requires sedation so that will add another element of anxiety for mom and dad. I guess the good thing is Cameron won't be nearly as agitated during the exams.
We also discussed the plagiocephaly (flat head) and torticolis (shortening of neck muscles) with Dr. Alden and he is sending us to see a specialist in this area to determine if Cameron will need a helmet and other methods beyond the PT to help in these areas. In two weeks we'll see this new specialist and put Cameron in the "STARScanner" sounds cool huh? Well I'm not entirely sure what it's all about but I believe it's technology that can measure the crainal spaces and help the orthotists determine what Cameron needs -likely a helmet. Good thing Winter is coming :) Maybe we'll have them put a big IU on the helmet to support the hoosiers during basketball season?
While I'm not excited about adding another specialist to our growing list, it's all for the right reasons as I was getting very concerned about the lack of progress we were making with the head and neck situation.
Cameron is doing well with both OT and PT getting them each once a week and we are now going to also add in another PT that will focus on something called Crainal Sacral Therapy - this is also to help the issues with his head and neck and will be more focused. I am hoping this assessment will take place in the next few weeks.
Hard to believe it's been 6 months! People are always asking how old is your son and they look at me funny when I hesitate - so I have officially decided to split the difference and call him 5 months for now rather than going into a long ditribe about well he really is 6mos but his corrected age is 4 months -- yadda, yadda, yadda...I am sure the general public is happy with my decision so I can stop boring perfect strangers with my tales of Cameron's age :)
We had a very nice thanksgving with Matt's family and Cameron made his very first construction paper turkey with Grandma Randi - he's quite an artist!
We capped off the holiday weekend with a trip to the Lincoln Park Zoo lights on a balmy 55 degree evening!
xoxo Mom and Dad
