It was such a humbling night and we are so proud of our friends for putting on a truly top notch event.
We feel so fortunate to have such supportive friends and family, it's because of everyone who gave to Cameron Can in many forms that we can take the financial worry off our list for the near future and we can begin to provide Cameron with some services we've always wanted to, such as private occupational therapy swimming, but could never afford before.
The success of this event also allows us to take our energy and focus it on Cameron's educational needs. We are embarking on the transition from special education to general education for next year, and this process is quite daunting and requires a law degree, patience, fight, tears, and a lot of fear. I'll dedicate a future post to this topic.
I am reminded with this new charge of finding the appropriate education for Cameron that nothing with him will ever be easy. We are continually confronted with fears, concerns and stress relative to his care.
He's been sick again, will this winter please end!
Concerns raised from school about stability, a sunday morning vomit, words we don't like to hear "my head hurts" and we all freak out. This is our life, and it's tough knowing when to freak out and when to reign it in. We are better about watchful waiting.
He threw us again for another loop this Monday night with a grimace on his face of extreme pain, clutching his ear and his head. A rush to the pediatrician at 7:30pm. He looks in his ear and says the words I've never heard before, but am so happy to hear. "It's NARSTY in there" Cameron, almost 5, has officially gotten his first ear infection. Yahoo! I celebrate by taking him for superman ice cream next door, even though he's beyond miserable he does not protest.
Connor had a similar thing about a week prior, oh how different things are when you have a healthy child. We dismissed Connor's complaints, lack of sleep and general misery rather quickly with, he's sick. Didn't even take him to the Dr. kids get sick, that's why god invented germs! Or at least that's what my pediatrician says.
Cameron's symptoms can never be dismissed, nothing is ever easy or without an extra dose of fear. No matter the topic.
Well I could go on and on...in good reports Cameron had an MRI yesterday (routine post surgery) Dr. Bowman says "I'm happy with his ventricles" I've heard this before and I hope it remains the case for many months. Orthopaedics was pleased with an increased range of motion, bracing him at night is really showing some success. His hips are still super loose, with major rotation but there's nothing we can do but surgery and we're waiting many years before considering that option.
Long, long post...much to catch up on. Thank you from the bottom of our hearts for the success and contributions to Cameron Can!!!!
xoxxo
