"Off, off, off"

Connor in his "Leisure Suit" pjs, yes they have his name embroidered on them!


The resident cutest reindeer


Cameron your Christmas wish has been granted...the cast was removed on Friday the 19th. Considering it all Cameron made it to 12 days before he started saying "off, off" and pointing to his cast. Of course now that's it's gone he is still pointing at his leg and saying "off", so he gets it, which is good.

We made it through the snow to the city on Friday, nothing was going to stop us from getting the cast removed. Despite the fact that I'm pretty sure Cameron thought someone was going to cut his leg off with the "saw" he survived. It was truly the FIRST time I could visibly see that Cameron was scared in the hospital. Of all the trips to Drs, shots, CT Scans, MRIs etc. I have never seen him so scared as when they started up the saw. It was not fun to watch him so terrified, and it makes me sad to think about future hospital visits now that he is aware of his surroundings but it's also a good thing because he is aware of his surroundings.

Once the cast was off he was gingerly walking around, it was good to see. He's still not 100% sure of things but with his new braces he seems to be doing ok. The braces are a work in progress to say the least. We are also supposed to have him wear one of the braces and a knee imbolizer at night, we tried it last night and after an hour of screaming we gave in. So we've got to work on this with him slowly.

Last week we also had Cameron's 6 month IFSP Review. All 7 of Cameron's therapists came to the house, I think he really enjoyed having all of his "friends" in one room at the same time. He would take turns going around and hugging them. It was a long meeting and we are talking about getting a functional vision assessment for him. We know his vision is ok as we see the Opthamologist regularly, it's more about how he uses his vision. Eye contact is not his strong suit to say the least. Beyond that we talked about plans for the transition from EI to the School District when he turns 3, it's quite a process and we won't get into it now.

In Connor updates he is a cutie pie!!! He is also starting to move around which is so great to see, he is not crawling, but he is sitting up and can maneuver his way around a room, basically going backward and sideways, it's funny to watch. I can tell these two boys are going to keep us very busy, very soon.


We also fit in a visit to Santa this past weekend, it was for sure the fastest visit in history. We walked into the Riverside Rec Dept at 3:23pm (Santa was going to be there till 3:30Pm) well he and his little elf were all ready to go when we walked in but we told them they had two more customers so they reluctantly went back into the room with the folding chairs and sparse decorations at best. The Elf didn't even take off her coat, but Santa was a pretty good sport. Cameron sat for about 5 seconds, Connor about the same and I swear we were all back in the car by 3:30pm.
It was really fine with us, we just needed to say we did it I guess.


We are looking forward to a nice Christmas at home this year, so if you are in the area and want to get together or stop by give us a ring!

I can't go without thanking everyone for your continued support of our family, it's been another wild year but a very blessed one too. Give all your kiddos a hug this Christmas from us... Oh and if you can figure out what our resident 2.5 year old is doing in the photo below, you'll win a prize :)


XOXO

The Blue Cast

Cameron is a champ! He got his cast on Friday and was a superstar, he chose Blue according to Dad.
It took him a few days to get used to walking with it on, but he's doing great now.
Good news, we convinced them to take it off before Christmas, so only two weeks with the cast.
Thanks to everyone for the well wishes, we are all relieved that it was just a fracture and it's great to see him walking again (even with a cast!)

NO!

Cameron has a new word...
NO!
It was really cute when he first said it on Thanksgiving. Now, it's kind of, not so cute. But it's a new word and we'll take it.

He also can say "Bath", which is always cute.

Along the same topic of NO, that's how I feel right now. Cameron stopped walking on Tuesday, we are pretty sure it's due to a small tumble in therapy that morning, but not 100% sure. So after PT that afternoon showed no signs of tenderness, swelling etc. we decided to let him rest overnight and hope for the best. But Wednesday morning same thing, won't walk and when he would try he would crumble to the floor, not in pain, so it's really weird. So after many dicussions Tues and Wed with Nicole the most wonderful and amazing PT from Children's (she helped diagnosis the tethered cord). She got us in with one of the Orthopaedic Dr's at Children's so we could avoid the ER nightmare. I love her!!!!

X-Rays, discussions and we are left thinking it's a toddler's fracture. Which is beyond frustrating because these often do not show up on x-ray. Good news, they ruled out a mass, tumor, or infection in the hip. But there was a discussion about is it something with the shunt, retethering of the spinal cord? I hate that damn shunt sometimes, it causes so many questions!!! Of course, it also saves Cameron so I can't REALLY hate it.
It's just so frustrating when there are so many other things going on with Cameron, a simple fracture, could actually be something else.

I left the Dr's office yesterday without a cast on Cameron. I asked him what to do and he gave me the option to wait till Friday to see if there is improvement or just do it then. In hindsight I clearly should have casted him. He is still not walking, and when I put his AFOs (leg support braces) on he will at least try to walk which tells me a cast would help him.

Tomorrow morning Cameron will go back to Children's and get a cast, for three weeks. Merry Christmas :)

I have to say that seeing Cameron crawling again is breaking my heart, he can walk and I want to see him do it again. Not to mention carrying a 28lb boy around is exhausting.

I am pretty sure we are dealing with a fracture but I won't be able to feel 100% about this until I see him walk again on his own.

So our Christmas wish is for Cameron to get better - FAST!