Matt recently said this while we were eating dinner, I chuckled. Although I do believe it's time for a "good year" and I believe we will have one. Not that last year was terrible, but it had a few rough patches, we'd like to go for a pothole free year!
So far we are off to a good start, Cameron is saying a lot of new words, it is so wonderful to hear! Some of his favorites (and ours)... M M = M&Ms, Ca Ca = Connor (input your own joke!) Mil Mil = Miller, "Ohh Maan", "Oh Drat" - from his favorite show Oswald. He also will whimper like "weenie" the dog on Oswald as if it's his own beloved dog making the noise.
Today he had me in tears when he did the "Penguin Polka" from Oswald. It was hilarious. This child loves "Oswald"!!!
He has many more words and many approximations for words, it's very encouraging. He knows his colors and some of his shapes, and a few numbers.
We added in another session of therapy to an already packed scheduled - we are now at 8 therapies in 5 days - INSANE! He tolerates them all well, so we will continue to get the most out of these last 4 months of EI.
With the therapy team we are trying a few other things, "listening therapy" where he is supposed to listen to this special CD 30 min 2xday - ummm yeah that's not really working out so well. You can see in this photo how much he enjoys this. I am trying to make this work but I don't think it's going to stick.
He is also supposed to wear his AFO and a knee immobilizer when he sleeps at night - seriously? By the time 7:30pm hits we don't want to fight about putting these things on him, so we're not. We are slowly working up to 10 min increments during the day of the knee immobilizer.
And finally he has a Binder that is to be worn around his trunk, this is to give him more stability and possibly improve breath support when speaking. This is the one I feel like I might actually be able to implement.
I feel as though I am not trying hard enough to make these things work, but then I am so tired I don't have the energy to go down the path of complete guilt.
His walking is improving, and then some days it's not, it's an ongoing question. He also has developed something called Clonus in his feet, he had this when he was very little and now it's back. Couple this with the changes in his gait, after many weeks of discussion with our two PTs they called his Neurosurgeon, and just to be cautious we are going in for an "MR" of his ventricles on Friday. This is a new procedure, it requires no sedation (YEAH!!) and no radiation (Double YEAH!)
We are expecting things to be status quo, it's just a precaution.
Cameron is starting to assert himself with his brother, saying things like "Move" and "All Done" to Connor. It's funny.
Connor just wants to be near him and play with him and doesn't seem the least bit offended by Cameron's actions.
Speaking of Connor he is a man on the move...crawling, pulling up, trying to climb.
He is also a piggy eater and such a cuddle bug, we love it. He came down with a bad bronchial infection a few weeks ago, they never tested him for RSV but the Dr said that's basically what he had. Wheezing, coughing etc so we got to use the nebulizer on him for two weeks, and visit the pediatrician every other day for a whole week to check in, fun times, but nothing compared to what we are used to. Cameron loved telling me when it was time for Connor's medicine and also enjoyed using it himself! As you can see...
All in all things are good, busy, but good.
