Can you believe our little guy is two years old?? We can't, he has come so far!
And we couldn't be happier to share the news... he is actually taking a few independent steps, it is such a joy to see him try to walk. He's a bit wobbly on his feet and his trunk strength needs improving but our boy will walk!!! Ironically we received his walker on Friday the day after his birthday and he loves it, motoring around the house. It was always a goal of ours that Cameron would walk by the time he was two, and he's getting there bit by bit. I am going to try to get him on video walking to post it, so far my attempts have been unsuccessful as he gets so excited to grab the camera he drops to his knees and starts crawling to me.
We have had a very busy birthday "week" last week, Cameron had his 2 year pediatrician check up and is 26lbs and 34" -- he is officially off the preemie chart YAHOO! We also saw the Orthopedic Surgeon and they are pleased with his progress and definitely think Cameron should continue to wear the leg braces (AFOs) we will see them again in 6 months. So now we just need to get through our kidney and urology appointments next week and we will be free of Dr visits till September. Well at least planned Dr Visits!
Which brings me to the unfortunate turn of events this past weekend... after a wonderful birthday party on Saturday Cameron started throwing up around 10pm, and to be honest we were just chalking it up to a crazy party day and maybe a little too much frosting. But it kept up for over two hours and we had to place the dreaded call to the Neurosurgeon, and well you know how this story ends by now if you've been following along. So off we went to Children's at midnight not to return home until Monday afternoon - what a way to spend the weekend. It was two years to the day that Cameron was admitted to Children's so this trip down memory lane was not very fun. Cameron was not in good shape, his fever would not come down, it was the worst we've ever seen him. There were growing concerns, blood cultures and taking him off all foods in preparation for an emergency surgery. Sunday was a long day to say the least, but we were relieved on Monday when he started to act like himself and the fever was coming down.
Cameron started charming the nurses and we knew we were back on track.
The culprit: some sort of nasty virus that he still has not shaken but I told Dr. Bowman given that he was acting better and no fever we wanted to get home.
So this story will repeat itself and that is what sucks about life with hydrocephalus, you just never know if it's going to be the shunt. These trips drain the life out of us, we don't sleep and are left eating McDonald's from the basement of the hospital. Matt said he is not eating it again for at least a month :)
I had planned to write Cameron's birthday post about all the funny stuff from the party and or highlights of the past year but to be honest I am so tired I can't think straight.
All that matters is Cameron is home now and on the mend, we are all back together as a family and hopefully you'll enjoy the video below with some great photos from the party and "happy" Cameron at the hospital, he requests no photos during the icky times, naturally!
Wednesday, May 28, 2008
Saturday, May 10, 2008
Suburbia...
Sorry it's taken so long to update, but moving to a new house with two kids under two and a crazy dog...I don't recommend it!
But we made it, we are officially suburbanites. It's been a whirlwind ever since Connor came home but we can't complain.
Cameron had his yearly follow up with the pediatric Surgeon Dr. Reynolds to assess the diaphragm growth and it remains stable. This is great news! We are to come back in another year unless Cameron becomes symptomatic or develops any sort of pneumonia.
On the same day Connor had his head ultrasound as a follow up from the one done at birth and he too is just fine!
It was truly the best visit ever to Children's for us - two kids, back to back radiology appointments followed by the surgeon visit- we were prepared for at least a two -three hour visit. We were in and out in 60 minutes, unbelievable! Nana and her friend Cindy were there with us and I told them they must now accompany us to all appointments!!
The packing and moving process was of course chaotic but with the help of Nana, Grandma Randi, Grandma Ellen and Cindy we made it. We are so lucky to have such wonderful support and help.
Connor is doing great, he is now up to 7lbs 10oz, we could not believe it. His due date was May 11th so he is now officially 40 weeks! Based on such good weight gain we don't head back to the pediatrician until May 21st, where both boys will get their check ups - Cameron his 2 year and Connor his 2 month.
We are still waiting to get a therapy team together in Riverside, hopefully soon as it's making me quite anxious. Also still waiting on the walker, I think Cameron will love it. He is getting really good with standing independently, taking a few more risks here, it's great to see his confidence building. Above is a photo of him standing all by himself in his "leisure suit" from his godparents Amy and Mike. He can stand alone for about 10 seconds and will take about 3 steps independently from time to time, he's very wobbly but he is taking steps!!!
Cameron has quickly taken to the new house and loves that there is a park right across the street, which has started to pose a challenge when we want to take a walk he starts screaming and pointing to the swings. Oh life with a two year old!
I welcome any and all advice on how to discipline a two year old!
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