It's nice to be typical...

HERE IS CAMERON IN THERAPY, NOT MARDI GRAS I SWEAR!






We just celebrated Connor's Baptism last weekend, it was a wonderful day and I have to say just so nice and "normal". I realize that might seem like an odd word but it was just your typical get together with family and friends, there was no medical drama, no explanations needed about baptisms done in hospitals, Connor was just like all the other babies who were baptized. It was nice. For a brief moment as I walked through my house filled with everyone I thought to myself so this is what it feels like to be typical. It feels darn good!

On that note Cameron had his 2 1/2 year check up yesterday and he has grown alot!
2 1/2" since May 22nd. He is very tall (75%) and very skinny 27lbs. But he is doing great, it was so nice to be able to impress his Dr. with how far he has come:
She heard him say a word for the first time
She saw him walk for the first time
She watched him identify shapes...
and quite frankly she was amazed. She looked at me and said who taught him this, did you?

We talked about how far he has come and how he has defied the odds. As she reviewed his charts & made sure he was still getting all his therapies. She then showed me how his head circumference is growing on track and then said "after that scare he gave me thank god" I'll never forget that day in Dec 2006 she looked at me and said "his head is not growing anymore" I asked what does this mean, and she said his brain may have stopped growing we need to get him an MRI and I burst into tears in her office. But we have come so far, his brain is growing, he is making strides.

We walked out of there yesterday the closest thing to a typical family we ever have before...coming back in 6 months for the 3 year check just like any other child. What a nice, normal typical day.

Oh and then Cameron went screeching up and down the halls of the office bldg for 20 minutes, a typical two year old.

Next week we see Neurosurgery and Orthopaedics - I've got a long list of questions but that's what happens when we get to wait 6 months between appointments. That's a good thing.

Halloween in Riverside

Cameron and Connor really enjoyed their first "real" Halloween in the burbs. It was a gorgeous day. Cameron protested putting his costume on, but once we got him outside and he made his first trick or treat stop he was good to go with a sucker in his mouth.

Believe it or not he actually kind of understood the concept of trick or treating. At one house he even discarded his beloved dog at the footsteps to climb up the steps to get the goodies. It was hilarious, it was as if he said "forget the dog I want the sweets!"

If you can't tell by the photos Cameron went as his favorite stinky, much loved dog - "neigh neigh" as he calls him. Why he calls this dog what you'd think he would call a horse we have no idea? But that's his name.
Connor went as a "pea in a pod" and fell asleep on the trick or treat trail :)

We capped the weekend off with a haircut for Cameron - don't worry it's not too short, but we were bordering on mullet status in the back.
Saturday evening Connor gave us a bit of a scare, his body temp was very low 95.4 and he had been extremely irritable all day, not sleeping etc. The pediatrician sent us to the ER, he's totally fine. I'm just going to chalk it up to him wanting to check out Children's for himself instead of always hearing about it...

Other than not really liking to sleep during the day Connor is a sweet little guy, he has a belly laugh that is so contagious!

In other news we are going through some intense discussions with the therapy team about various things. Cameron's speech delay is our main focus right now, and trying to find out if he has something called Speech Apraxia. And then there's some other more involved stuff about him being "disorganized" inside, it's really hard to explain so I'm not going to get into it. We've got to make the most of these last 6 months with Early Intervention, and at the same time prepare for the transition process. Yet another thing I'm not going to get into right now.

As for the walking Cameron is doing really well, I can't say it enough, him walking has changed my life so much and is truly something I cherish every single day - to see him walk on his own is one of the most amazing things that has happened to us.

There are huge feelings with those small steps he takes.