Tuesday, November 27, 2007

50 Days

That's how long it's been since we were at Children's! or any Dr. for that matter - it feels great!!!
Some might consider the 6 weekly therapies medical related appointments, which they are, but I consider them more a part of our routine now.

I can't tell you what a nice break it's been to not be schlepping ourselves into a Dr's office and then waiting hour after hour. When I look back at the Calendar this time last year in Nov and Dec alone we had over 10 appointments with various doctors and it was the dreaded time where we started to learn more that eventually led us to the tethered cord business 6 months later. What a difference a year makes!

Reflecting back is good sometimes as it makes us appreciate how far Cameron has come and quite frankly how far we have come! Yes, there are still challenges ahead but during the holidays we are going to be focused on being thankful for the good health that Cameron has and his growth in so many ways.

We will find ourselves back at Children's next Tuesday (Dad's birthday!) for a Kidney Ultrasound and to see Dr. Yerkes. I expect all is good, we just have to keep an eye on his kidney to make sure things are still operating well.

I guess it's a good thing we've had a break from Cameron Dr. appointments because Mom has been logging some serious time at various Dr's offices. I am fine, well that's a relative term really given the circumstances, because we are PREGNANT again!

Some of you are probably as shocked as we are, actually I doubt it. It's been a long 16 weeks and I am sure it doesn't take a rocket scientist to figure out that we didn't plan this but I learned about 3 years ago that god laughs at those who make a plan. I am pretty sure he has not stopped laughing at us for a long time!

We are blaming a child free trip to Dublin and Guiness for this :) Naturally an Irish name is in order so please send any and all ideas - seriously!

We have held off in sharing this news for many reasons, we have talked with several geneticists, had many Dr. appointments and 4 ultrasounds already. So far, so good!
Positive outlook is key for all of us as you can imagine it's been and will continue to be a pretty emotional time for us, Mom especially since her hormones are already out of whack.

Yes, we are nervous, scared, freaked out about it all, but we are also very happy. Every ultrasound will continue to be an emotional roller coaster there is no doubt.

Mom is just over 16 weeks along, after a level 2 US yesterday showed no major problems at this point we felt it was ok to share the news. It's hard to see much but it was a bit of relief. Risk recurrence is somewhere between 2-5%, seems pretty low right? It's middle of the road actually. We will continue to closely monitor the baby's progress and mom's progress. After talking with a specialist yesterday it sounds like we aren't going to truly be able to breathe a sigh of relief until close to 32 weeks. We'll make it...

Dad learned yesterday how to give Mom a Progesterone shot - SCARY! -- not the shot, Dad administering it is! Mom will receive this once a week till delivery, it is supposed to help prevent pre-term labor.

So Happy Thanksgiving and Happy Holidays to all...we'll keep the blog updated with Cameron and his soon to be big brother status. One of the Dr's asked us if we told Cameron yet - I laughed out loud. Yeah, we told him and he said that's the last time you two are ever leaving me alone again!

Oh and here are all the standard question answers (if we missed one just let us know)

Due Date - May 11, 2008 (yes that's 11 days before Cameron turns two!)
Sex - they know but we aren't sure we want to know yet, or at all we'll see. We are somewhat inclined to do everything differently this time
Are we moving to the suburbs?
Yes, in our "free" time we have been talking to and meeting with various school districts about their special education programs, turns out CPS isn't going to cut it for Cameron. Not sure where we are going but close to the city for obvious reasons (dad's work and Children's).
When are we moving - ASAP, let's hope before May 11, 2008!


Love to all
Mom, Dad, Cameron and Baby #2
Here is Cameron after we told him

Friday, November 16, 2007

Taking our time ...




So it's been kind of a blah week, I won't go so far as to say rough because really we know "rough" and this just doesn't qualify in my eyes.

Basically we're going to increase the intensity and frequency of some of Cameron's therapies. I applaud our therapy team for being so on top of things and wanting to get Cameron to be the best he can be. We will now be combining PT and Cranio Sacral Therapy into a co-treatment twice a month and then continue with standard PT and CST + Developmental Therapy individually on the other weeks. We are also increasing Speech Therapy to every week - which I am really happy about because Cameron needs this.

I guess the blahs for me lie in the whole question of walking for Cameron - I know it's going to be later than your average boy and I am fine with this, I asked if walking by his 2nd birthday would be a lofty goal and I realized after saying it that asking this is not fair of me. So I rephrased the question to "Will Cameron walk?" and the therapist said yes. I just need to take the timeline off of all of us and I think he'll do it in his own time just like he does everything. As she said it took Cameron a while to crawl, and now he is an expert crawler doing it in great form.

Time, we just need to take our time, I will repeat this on those blah days :)

So the therapy schedule is now even more jam packed if that was possible but it's all for the right reasons. Here are some fun photos of the last few weeks at home.

Sunday, November 11, 2007

Chicken Run!!!!

We took a trip to Indianapolis two weeks ago for Mom's friend Jenn's baby shower and spent some time with the McKeown Family, they have two adorable little girls Allison and Anna. Now, we all know no trip to the cornfields of America is not complete without a visit with some local livestock. We went to a local Creamery and saw all the Chicken, Calfs and Cows up close and personal. Enjoy the photos below...








Cameron has been doing well, despite a cold that set him back a bit but nothing major. He was quite a bear during all therapies last week, but all of the therapists agreed they'd let it slide given his usual charming demeanor. We're in the midst of a battle to figure out a new nap schedule as it appears we are ready to drop to one nap per day (boo hoo for mom!!!!) So I am trying to navigate this change without messing up to many of our therapy schedules.

Other than that not much is new to report we are enjoying the Dr. free month for sure!

Thursday, November 01, 2007

Happy Halloween






Hope everyone had a fun night! Here are some photos from the trick or treating event on Southport Sunday (it was a zoo!!!) Cameron ended up with only one piece of candy b/c it was so crowded...Amy, Mike and Ditka joined in on the fun, they brought the leiderhosen all the way from Germany for Cameron!!!
Last night we carved our little pumpkin in lieu of trick or treating.