Therapy Reports are in...

We had the annual IFSP meeting with all of our therapists and service coordinator last week. There were no real surprises - in summary Cameron has 50%+ delay in his stationary motion (bascially sitting up and the like) this is all related to the hip/leg tightness we are still struggling with. Locomotion is better at 33% delay. Language/Speech is the other weakness, more so in expressive language at 50% and Receptive around 20%.
There's a whole bunch of other numbers, in some cases he's doing age appropriate thing and in others not - overall is probably at the equivalent of a 8-9 month old
Fine motor he's doing really well - hooray!

All these numbers aside everyone agreed he's the happiest baby they have ever worked with!

I am not worried about any of this really because we're just going to keep working hard. Yes, it's hard to hear that your 14 months old is like an 8 month old but i'm over it.

We are going to add in another therapy - developmental therapy. So that brings us to a grand total of 5 therapies. We also revisited talk of seeing Dr. Vicari again about Cameron's head shape. It's slowly improving, but if we decided to go the route of the helmet that would eliminate a therapy for us. It's tough call b/c we would love one less therapy but the helmet costs anywhere from $2,000 to $3,000. We see Dr. Vicari next week so we'll see what he thinks.

This past Monday we got to test Cameron all over again at the Children's NICU follow up clinic. I told them we just went through all of this so they weren't all over us, but somehow it still took 3 hours. We did get to see Dr. Matoba who we love, she was with us from before Cameron's birth so that was nice that she was in clinic that day. The PT was pretty concerned about all of his leg tightness, when I asked what should we do she suggested we discuss in depth with orthopedics. So the only thing left to do for the NICU group is get a hearing test. I suggested that we need not come back since I clearly am on top of the therapy bit. They agreed we just need to call in 6 months with an update. YEAH....no more half day NICU visits!!!

Sorry for all the medical stuff - but that's been kind of the story around here lately. In other news Cameron loves lemons - yes, RAW lemons. He has also taken to avacado and banana after many months o protest we are so excited!

Thanks to all for your continued support and donations to the Marathon to benefit Hydrocephalus. We really appreciate it.