We finished up all but one of our Children's appointments for this round last week. Naturally a long day but we received good news all around!
Cameron's Hydrocephalus is under control and we are keeping the valve on the shunt at 2.0. As Dr. Bowman said he has an "ideal" amount of fluid in his ventricles right now for someone with Hydro. His Muscle Test showed improvements as well - all signs pointing to a successful surgery and progress in therapies. The best news of all is that we do not need to return to Nuerosurgery for 6 months - this is HUGE! We won't be back till March which is amazing and a major milestone for Cameron. Even better we won't need to repeat CT Scans until Cameron shows/tells us something might be wrong physically - this is even better news to me as it means no more sedations for a while.
Orthopaedics was also pleased and did not feel repeat X Rays were needed to check on the curvature of the spine - we will continue to monitor over the future, but no imminent cause for concern.
Cameron also received his orthotics and we are working on breaking them in, he tolerates them very well. It's amazing the base of support they provide for him. We capped off the week with a visit to the pediatrician, this was the first time I felt like we didn't have a thousand things to discuss and ponder which felt great.
Cameron is now 21.6 lbs and 31.5" tall. We have officially made it into the 5-10% percentile for weight. They couldn't get over how fast his length is growing.
We are prepping for the big Race on Sunday - Dad and Cogan are going to need some extra support given the record highs they are predicting! We'll be sure to post photos after he crosses the finish line. Thank you again to everyone for your very generous donations we are at just about $8,0000 which is wonderful and we are so pleased to be able to support the Hydrocephalus Association thanks to all of you.
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