1. Only your Childs primary neurosurgeon will make the call on surgery, no matter how many professionals will tell you in a 12 hour time period he will need surgery tonight.
2. There is power in numbers. I believe The many people who have prayed for our family in the last 24 hours have brought Cameron to a place where surgery was not a sure thing.
3. The Eric & Kathy Radiothon to support Children's Memorial Hospital going on in the lobby of this hospital is not for the faint of heart and is a reminder for all to hug your healthy children. On a side note 3 out of the last 4 years Cameron ends up inpatient during this radiothon, while its for a great cause I'd prefer to support from home!
4. Speaking of home, in our return to 3west and the 6 bed icu area we have seen two families that have not left since we were here just a week ago. Count your blessings
5. I love the nurses on 3 west, Kim our favorite from last week got me one of the brand new "parent" chairs, there are only 24 in the whole hospital. I was so excited about trying this bad boy out in hopes of actual sleep.
4. Sorry, but the new " parent" chair gets a bad review from this parent. I'll take the 20 year old version next round..
3. We have some pretty amazing friends who continue to show up for us no matter how many times they get the call. Thank you morels, renkes, Julie, ap & mike, kunish fam.
2. I don't have any more lessons, too tired, but 8 lessons from 9/ 10 didn't work as a title.
1. The latest update: Cameron did not have surgery and will not be having it anytime soon. The high fever has not returned since last night, preliminary results are no infection or psuedocyst, hooray! Only a few heart rate drops over night Today we wait for final cultures and hope that Cameron wakes up ready to roll into the life center. Dr. Bowman is actually happy with the increased size of his ventricles " we just need to be sure Cameron is happy with them" she said. It is possible we could take this roller coaster ride again at any moment, that's life with hydrocephalus but for now we concentrate on getting home today...
**post update 1:30pm Saturday 9/11/10 - WE ARE HOME! And my dear husband just informed me that my post repeats numbers and actually only adds up to 9! Well this is what happens when you don't sleep for the last 24 hours much less the last 5 months...pretty telling if you ask me, I got a good laugh when he told me.
Saturday, September 11, 2010
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3 comments:
beautiful blog and pictures! Did Cameron have a setback?
LOVE THE NEW FORMAT!! Who did it!!? Sue
So glad to hear you're home! We've been praying for you all.
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