We arrvied at CMH at 9:30am and Cameron went in for surgery at 1pm with his favorite stuffed doggie, just two hours after the scheduled time. This is nothing compared to the last time we had surgery so we were relieved. He charmed all the nurses and doctors - no surprise.
Surgery went smoothly, it took several attempts to get an IV in so he has many pokes and two IVs. His heart rate dropped below a comforting level so he got another shot of some medicines and didn't have any problems. They snipped his "tongue tie" first and then did the removal of the fatty filum. The Dr. said he has a rather narrow canal which is typical of children with hyrdrocephalus. The likelihood of retethering is rather small.
We saw Cameron in recovery around 4pm, I started getting that sick filling in my stomach as we approached recovery as I hate seeing our little guy this way. But he looked pretty good, a little puffy and was peacefully sleeping.
And then the drama began - the stuffed dog was missing!!!! Cameron loves this dog, it's got all his favorite smells and is the perfect size for him. So we panicked, everyone from the nuersurgeon to the anethisologist was looking for this dog - they pride themselves here at Children's on never losing the beloved animals. Laundry was called back up, 5 people are sorting through it all and there is NO DOG!
Just when we had succumbed to defeat, Dr. Bowman, our nuerosurgeon, arrives doggie in hand! She promptly dropped him into a plastic bag for us to take home and wash prior to letting Cameron cuddle with it. Apparently "doggie" took a trip to the ICU, he was intabated and all :) at least that's what they told us. He's doing just fine, thank you. I guess he mistakenly got placed on another bed where there were many animals and someone just assumed he belonged there.
THE DOG "QUARANTINED"
So back to Cameron, we made it up to the nuerosurgey constant care ward around 5 or so and Cameron was doing pretty well he threw up twice which was not fun. By 7 he still had not gone pee so they had to cathertize him, Dr. Bowman said this is pretty normal. He then was drenched in water underneath his whole body I freaked out and thought he was leaking spinal fluid - luckily just sweat. Which is so not like him.
It was a long night without much sleep we had to cath him every 4 hours and he just couldn't get comfortable. By 7am he peed on his own so hopefully no more caths. The hardest part of this whole thing is going to be keeping him on his back for the next 4 days, he just wants to get up - it's a real struggle.
We'll keep everyone updated on the progress, I need to go get some sleep now that dad has arrived here.
REUNITED WITH DOGGIE AND SMILING AS WE WHEEL HIM AROUND IN THE WAGON TO KEEP HIM ON HIS BACK...FUN FUN!
xoxo
7 comments:
Thanks for the update Rory!! Praying,praying!!
Sue Simpson
We missed you guys tonight but are so thankful and happy to hear Cameron Made it through with no major hiccups.
Wishing you guys the best and can't wait to see ya again. Love and god bless,
Will and the Gang
Excellent news on the little guy, bless his heart day to day and day after day....and to finding the doggie. i would have sent the best team out to help find if needbe. REST WELL my little friend and enjoy this heat wave in the midwest. stay cool and prayers coming out from nico, eddie, kate and all the donnelly family.xx
That smile....priceless and precious!!
Sue Simpson
Cameron is such a trooper! He's smile is beautiful. Get some rest (as much as you can)-- and we will be thinking of you guys as Cameron makes a quick recovery. Thank goodness doggie was found. haha! What a story! Thinking of you!
Alicia, Ted & Dylan
So happy to hear everything went well- and Cameron looks great despite just coming out of surgery!! He's just adorable. Wishing Cameron a speedy recovery and some time for mom and dad to rest :)
Lauren
PS THE BIGGEST PS EVER;
HAPPY FATHERS DAY MATTIE. you are the best dad of the year award for the donnelly year award event! congrats; it's a tough award to win. xx donnelly.
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