Happy 4th!

I just realized I had not posted since we saw Dr. Bowman, she thought the wound was looking very good. I have to agree it's amazing how quickly and nicely it is healing. She asked if we noticed any changes as she did not see a change in his legs. But she reminded us that the idea of the surgery is to prevent further damage and it would be nice to see some increase in motion in his legs and release of the tightness. It doesn't appear as though that is the case, which is disheartening, but there is no loss of motion from pre surgery so we must be thankful for that.

Cameron resumed his therapies this week - we got them all in, amazing. PT, CrainoSacral, OT and even ST. He's doing really well with his eating. OT and PT agreed his legs and hips don't seem to show any signs of change, but there's also no loss of motion so that is a positive sign. As a result of being on his back for so long his scapula is popping out again so we are going to start taping again and few other things. The good news is all of the therapists were pleased with his recovery.

As you can see below he is starting to pull up onto things, he uses all of his upper body strength, we're working on getting the legs involved. He is army crawling all over the place and we get an occasional true crawl, all with time I am sure.



Doesn't the table look tasty!

I have to admit it was nice for awhile to not have therapy and all the surgery stuff looming over our heads. I actually felt like your typical family for once, it was nice while it lasted. We're back to our full therapy schedule and today I was on the phone with Children's for quite a while trying to get all the follow up appointments set for early September - Dr. Bowman (neuorsurgeon), Dr Yerkes (Urology), Dr Dias (Orthopedics), a head CT, CMG (bladder test), Muscle test and Renal Ultrasound. How's that for a slap back into reality! There was talk of doing this all in one day so that all the results are in and can be reviewed at our actual Dr appts. Should be rather interesting, we are still working on times.

In other news we celebrated Nana's 60th birthday. Nana taught Cameron all about Wimbeldon while she was here. They watched it everyday and I think he's ready to hit the courts!
We enjoyed July 4th out in Lake Forest with our friends the Savages and Aunt Anna (aka annie the nanny) made it out with her family and it was so nice to catch up and meet Michael, Sam and Chloe.

Cameron REALLY wanted to go to the Taste of Chicago, but we told him NO!! So instead Dad gave him this Turkey Leg at home and told him it was just as good as the one from the TASTE- as you can see he seems to be thoroughly enjoying it!

We are off to celebrate Grandma Randi's 60th Birthday tomorrow - Happy Birthday Grandma Randi!!!

XOXO
mom and dad