Saturday, March 29, 2008

Growing, feeding and losing our minds...




There are many reasons for the delay in posting updates, and we'll keep it brief because we are all extremely sleep deprived.
Connor:
* Doing well and weighs in at 4lbs 14 oz as of today. He took his first bottle of 20ccs
* He is on and off of the photo therapy as his bili levels continue to go up and down, right now he is back on the lights
* He was moved into an open air crib last night, no more incubator/isolette
Really he's just growing and needs to learn how to feed and he should be able to come home, we suspect sometime mid-April.
* Riding the preemie roller coaster again is no fun, but we feel blessed that is not struggling with anything more. Leaving him at the hospital is very hard.

Cameron:
* The day mom came home from the hospital Cameron got the Flu - made for a great easter weekend of throwing up. We did the usual call into the neurosurgeons but all felt pretty confident this was just the stomach flu and saved ourselves a trip to Children's.
* Received his new orthotics (AFOs) we are not sure about these and will review their use with the PT on Monday.
* He is going to measured for a walker in the coming week
* He is working really hard on some words, it's very cute and he loves to dance and it's just so wonderful to be at home with him and see him do all these things instead of hearing them through the phone
* He was able to go from sitting to standing on his stool in PT last week but we have not seen him take any steps on his own like he did during the one PT session a few weeks ago, but we know he's close

Mom:
* Another trip to hospital hell and emergency surgery early Friday morning around 12:30am for an umbilical hernia. It took from 11am to 7pm in the ER, multiple tests, CT scans, and general "not fun stuff" to get this diagnosis and the decision was made to repair this immediately to prevent major problems from developing. So mom had surgery at 12:30am on Friday and was in recovery by 2:30am and demanded to go home by 5pm Friday evening, thank god the wonderful Dr agreed to let me go. So just as I was getting back on my feet after childbirth I am now slammed back down and not supposed to lift anything more than 20lbs for 4weeks. I am in a ton of pain but trying to keep moving around so I don't get so stiff. UGH!

We have to believe that we have now played all the "bad" cards and this insanity will end.

4 comments:

Barbara said...

JESUS!!! I am shocked at what can be thrown at you - and you guys just keep on pushing back! What a roller coaster!

I wish there was something that I could do to help you! You sure ar ekept busy! Call me if you need anything!

P.S. John's B-day was a blast and Cathy showed up so I finally got to meet her! It was great.

Anonymous said...
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K. said...

YOU GUYS ARE NON STOP amazing amazing. don't worry SWEAR the ligth is @ the end of the tunnel. xx kate.

Kristin said...

I can't believe this too! You just keep proving again and again how strong you all are. Take good care of yourselves, and we'll keep praying for Connor to come home!