Well rumor has it Cameron might get to come home very soon!!! We are of course so excited with this news. Neurosurgery is calling him their little "Star". We talked at length with one of the nuerosurgeons on Monday and he explained in detail how well he was doing, calling him " a new baby" after surgery. We still need to wait out a full 2 weeks from Surgery to feel more confident that the procedure worked, but right now we can't help but be optimistic. As we all knew the Third Ventriculostomy has a 50/50 chance of working in children Cameron's age, and is not done very often compared to shunts. So this truly would be a miracle if it works.
He looks great and is a little piglet - they have now told us he can eat "ad lib" basically whenever he wants. He seems to like this, gulping it down so fast Mom struggles to get him to burp!
I inquired about all of the other obstacles Cameron is facing and how that impacts his discharge date. Given that they are all longer term issues that will be followed up on a regular basis with various specialists the kidney, heart, diaphragm and Dandy Walker should not prevent him from coming home very soon.
We are thinking by this weekend, which would be so wonderful!! Stay tuned...
1 comment:
WOOOO HOOO!!! Great news... Just let Uncle Will know when he can come play with him and Miller!! I am so excited and happy for all of you. Hopefully, Miller doesn't eat Cameron like he does the walls. Excellent news keep it up Cameron.
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