June 5th - My First day in clothes...

Cameron came off of the bili (tanning) light, which meant he could actually get dressed in the first little preemie outfit we brought him. He looked very cute, and the nurse was so good to us helping him put it on and still keeping all of his monitors in place. It was a very long day for Mom and Nana who spent all day at the hospital waiting to hear from the neurosurgeon on the MRI - Dad made it over after work just in time to meet with the Dr. and unfortunately the news was not what we had hoped to hear. Cameron will need brain surgery to reduce the fluid levels and prevent them from growing. There are two surgery options the Dr is considering and he will not know until they get into the surgery which version they will go with - Option 1) Third Ventricularostomy Option 2) Shunt. The MRI shows a potential blockage (acquedoctal stenosis) which would lead them to option 1 - but it's hard to tell at this point. They would like to do the surgery this week, but Cameron needs to gain some more weight before he can undergo surgery. We hope to know tomorrow what the timing will be. The surgery will also give us a better idea of the Dandy Walker Variant situation. What the Hydrocephalus and Dandy Walker variant means for Cameron later in life is unknown, we will just have to wait and see. We'll be seeing a lot of the Neurosurgeon for years to come.
There was some good news, the VCUG (Kidney) test was done today and it did not show a reflux problem, so Cameron had a renal ultrasound to check on the swelling - we'll see what that shows tomorrow. Hopefully it's just something that can continue to be treated with antibiotics and watched.
So that's it for today, and that's enough! Please pray that the surgery goes well. xoxo mom and dad