Last night Cameron graduated to a crib out of the heated "bed", Mom and Dad were very excited! Unfortunately when Mom arrived at the hosptial today Cameron was no longer in his bed, some other baby was - after a brief moment of panic it turns out Cameron was moved next door - why I still don't know. But he is now in an incubator, as he could not hold his body temp on his own. So no more long cuddle sessions with Cameron for a while.
I had a chance to speak with the Nuerosurgeon today to discuss the comparison of the head ultrasound from earlier this week with the one from last week - unfortunately the fluid levels have increased, so we need to get the MRI done now. Cameron is scheduled for the MRI tomorrow - they'll need to sedate him to ensure he stays still. The MRI will tell us more about the amount of fluid, location and more. It will also give us a better idea of what the status is regarding his cerebellum and the potential Dandy Walker Syndrome or Variant. While we figured he would need an MRI before discharge, we really were hoping the ultrasound would have remained consistent from last week. We'll have to see what the results show and just take it day by day, and wait to determine when the surgery would be done to control the fluid.
Cameron is gradually increasing his feedings he is now up to 35ccs - but he gets pretty tired so today they decided to put the feeding tube back in to ensure he gets all the food. He took about 15ccs from me in the bottle today, so we're half way there. They tell me this is by no means a set back, it was actually quite impressive that he was taking from the bottle in general.
Given that the MRI is now priority #1, the VCUG for his kidney will likely not be done until Monday - he's on antibiotics to temper the swelling so that is good for now and they tell me it's highly unlikely the findings of the test will require surgery. But I'm not going to talk about the options for treatment until I know the diagnosis as things seem to change by the moment.
So it was a full day with new information, not all good and not all bad. xoxo mom and dad
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